There was an article on the front page of the health section of our daily newspaper today from an interview my wife and I did a couple weeks ago. Here is the link. It is so hard to describe to anyone not diagnosed what it is like to have this disease. Among those of us diagnosed usually you don't even have to finish your sentence before someone knows exactly what you are talking about and someone else listening that isn't diagnosed often doesn't even really understand what we are trying to explain. That is why the online communities, one of which I started, comprised of all diagnosed people are so important to me and so many other diagnosed people. We have also been doing a weekly virtual support group with a program called "Zoom" that is a very nice video conferencing suite. Laura Bowley from Mindset has been so kind as to facilitate our weekly group. It is a concept that I hope will spread around the globe and bring support to so many that feel totally isolated with these diseases. Hopefully we are going to do a presentation at a national conference in 2014 about this new concept but that is still in the planning stage to see if it is feasible. Until next time, take care!
See Home of my site to learn more about me.